Center of Rare Rheumatic and Auto-Inflammatory Diseases in Children
Services in The Center of Rare Rheumatic and Auto-Inflammatory Diseases in Children:
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Consultations by experienced pediatric rheumatologist, nephrologist, orthopedist, ophthalmologist, neurologist, otorhinolaryngologist, infectious diseases specialist, pulmonologist, oncohematologist, geneticist, adult rheumatologist.
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Psychological support: consultations, emotional crises management, supportive therapy, relaxation techniques.
We diagnose and treat:
- juvenile idiopathic arthritis,
- systemic connective tissue diseases (systemic lupus erythematosus, juvenile dermatomyositis, mixed connective tissue disease, antiphospholipid syndromes and conditions, systemic sclerosis, various types of scleroderma),
- pediatric vasculitis (Henoch Shonlein purpura, Kawasaki disease, Takayasu arteritis, polyarteritis nodosa, various granulomatous vasculitides of small vessels, Churg-Strauss syndrome, microscopic polyangiitis, leukocytoclastic and hypocomplementemic vasculitides, isolated CNS and other secondary vasculitides),
- autoinflammatory diseases
- PFAPA,
- mevalonate kinase deficiency,
- familial mediterranean fever,
- cryopyrinopathies,
- behcet disease,
- chronic recurrent multifocal osteomyelitis (CRMO),
- Sapho syndrome,
- various forms of psoriasis,
- inflammatory bowel diseases (Crohn's disease, ulcerative colitis),
- CAPS,
- TRAPS,
- IL-1 receptor antagonist deficiency (DIRA),
- Majeed syndrome,
- Blau syndrome,
- pyogenic arthritis,
- pyoderma gangrenosum and acne syndrome (PAPA),
- CANDLE syndrome,
- Schnitzler’s syndrome,
- Sweet syndrome,
- and other rare auto-inflammatory genetic syndromes.
International clinical research:
- A Multicenter, Randomized, Double-Blind, Placebo-Controlled, Parallel-group Study of Ustekinumab in Subjects with Active Systemic Lupus Erythematosus. Researchers: V. Panavienė, S. Rusonienė.
- An Open-Label Extension Study to Assess the Long-Term Safety and Clinical Benefit of Etanercept in Children and Adolescents with Extended Oligoarticular Juvenile Idiopathic Arthritis, Enthesitis-Related Arthritis, or Psoriatic Arthritis Who Were Previously Enrolled in Protocol 0881A1-3338-WW). Researcher: V. Panavienė.
Other biomedical studies:
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PRINTO project: The PRINTO Evidence-based Revision of the International League Against Rheumatism (ILAR) Classification criteria for juvenile idiopathic Arthritis (since 2020)
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PRINTO project: A multinational study of the epidemiology, treatment and outcome of childhood arthritis (EPOCA)
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PRINTO project: Autoinflammatory diseases registry (EUROFEVER).
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PRINTO project: A pharmacovigilance project in Juvenile Idiopathic. Arthritis (PHARMACHILD)
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International project, database EuroMyositis (started in 2010, we are participating since 2018)
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GIGA-KIDS - Genomics of IgA-Related Diseases in Kids
